October is Down Syndrome Awareness month. This is our third time participating and raising awareness for Down Syndrome. We actually found out Adaline could possibly have Down Syndrome in October of 2015. We had received the genetic results saying that Adaline would be a girl, and that I was high risk carrying a baby with Down Syndrome. I'll share our diagnosis story again in a different blog post.
To kick off October, especially after such a horrific start to October with the shooting in Las Vegas, I thought it would be best to start with Trisomy 21 Acts of Kindness. These Acts of Kindness don't have to be big bold acts. It could be anything from texting or calling an old friend you haven't heard from and letting them know how much they mean to you, or paying for the person meal in front of you in the drive through, or tipping a little extra when you go out to eat, donating blood, helping an old person cross the street, telling a mom whose struggling with all her kids at the grocery store that she's doing an amazing job. Comment your ideas below. Id love to hear them and how helping someone in return helped you.
Here are 21 facts about Down Syndrome:
There are three types of Down syndrome: trisomy 21 (nondisjunction) accounts for 95% of cases, translocation accounts for about 4%, and mosaicism accounts for about 1%.
Down syndrome is the most commonly occurring chromosomal condition. Approximately one in every 700 babies in the United States is born with Down syndrome – about 6,000 each year.
Down syndrome occurs in people of all races and economic levels.
The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age.
People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.
A few of the common physical traits of Down syndrome are: low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today.
People with Down syndrome attend school, work, participate in decisions that affect them, have meaningful relationships, vote and contribute to society in many wonderful ways.
All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
Quality educational programs, a stimulating home environment, good health care and positive support from family, friends and the community enable people with Down syndrome to lead fulfilling and productive lives.
People don’t have “mild” Down syndrome, or “severe” Down syndrome. Ability is not dependent on the condition, but rather the individual. People either have Down syndrome or they don’t.
Contrary to popular belief, people with Down syndrome are not always happy. They experience every emotion you and I do. Trust me.
Children with Down syndrome go through the same stages of development as typical children do. The difference? Compared to their peers, it takes kids with Down syndrome longer to achieve milestones. Things like rolling over, sitting, crawling, walking, talking, etc.
Not all kids/people with Down syndrome are the same. Knowing one person with Down syndrome, does not mean that all people with Down syndrome are the same. We are all individuals, all of us, regardless of how many chromosomes we have.
People don’t “suffer” from Down syndrome. In a study conducted by Brian Skotko, 99% of adults with Down syndrome reported they were happy with their lives.
Adults with Down syndrome do not live with their parents forever. Many live independently and thrive.
Fifty years ago, parents were still encouraged to send their babies born with Down syndrome to mental institutions. That was not too long ago. What you see now is the hard work and determination of parents willing to fight the battle for their children, and for the many that have followed. We have come a long way, as my daughter now sits in a classroom where she is fully included…and accepted. This is worth celebrating!
The word “r*t*rd*d” is offensive, it hurts. People with Down syndrome deserve respect.
One of the most significant challenges for people with Down syndrome is low muscle tone. Low muscle tone affects speech, gross motor skills, and fine motor skills. Speech, physical, and occupational therapy help.
Siblings of kids with Down syndrome are not affected negatively, on the contrary, most siblings report that their relationships is one of the greatest gifts in their lives
Down syndrome is named after Dr Langdon Down, the physician who first described its features in 1866. The word “syndrome” means “a collection of signs and symptoms usually found in combination. Down syndrome is caused by extra genetic material.